Saturday, September 24, 2016

Fighting of Cold (Transplant Day +43)

So the good news is that nothing has grown from her 24 hour cultures!!! Mia has been sleeping a lot! The only thing that came back positive is the rhinovirus which basically is a common cold.

The doctors are saying she has somnolence syndrome which occurs weeks after radiation. A rarer complication which is extreme tiredness, where you sleep nearly all the time. It starts about 6 weeks after treatment ends and lasts about 2 weeks. Symptoms of somnolence syndrome include:
  • drowsiness
  • lethargy (lack of energy)
  • mild headache
  • low-grade fever
  • nausea and vomiting
  • loss of appetite
  • irritability
  • confusion

  • At this point, we are a week into this and hopefully almost done. Symptoms will improve on their own. They will monitor her for the next day or two and as long as she continues to improve they will discharge her.

    She even walked with holding my hand around the room this morning. She also had PT and did great!

    Your prayers and support are beyond incredible! Thank you!!!

    Transplant day +43

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