Mia had a rough night last night! They are weaning her off of IV steroids so hopefully that helps tonight with sleeping. We will also see how much of her rash returns with being weaned. She was a last minute add-on today to the OR schedule. They removed her extra central line late this morning. She did great and there were no complications!
We had discharge teaching today and we are excited to start this next chapter in our journey sometime next week! Mia will basically be on lockdown as far as going anyway and especially with entering into cold and flu season soon! Our outpatient NP basically explained that even though her white blood cell count looks good, that they are basically immature cells like a newborn baby and do not know how to fight off infection.
Please continue to send prayers as they are working! We are praying for you as well!
Transplant day +21
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