Mia had a good appointment today. We are beginning to wean her appetite stimulant medication because she is eating great and has gained a little over 2 pounds in 2 weeks. We also think being on this medication is the cause of her not sleeping well. Hopefully her eating continues and sleep improves once she is off the medication.
We also started weaning her anti-rejection drug today. This medication is considered an immunosuppressant so it could be the cause of her donor cells being 99% instead of 100% in her marrow.
It was also discussed today that she will get bone marrow biopsies at 6 months, most likely 9 months, and 1 year. This is a new protocol so things might change a little here and there. The hope is that her marrow will be 100% donor soon or if by chance the leukemia returns they can catch it early hence the repeated biopsies. So far, everything indicates that things are heading in the right direction and there are no concerns at this time. We will be back in 2 weeks for another appointment.
Mia is enjoying being home and still adjusting to her new life. We are just beyond blessed to have everyone under one roof.
Team Mia continues to work on collecting gifts for the families at CHOP. If you would like to donate anything, please let us know as we will be delivering everything sometime next week!
Thank you again for everything!
Transplant day +110
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