Thursday, May 19, 2016

May 19th, 2016

Another rough day here. Mia has been extremely tired and slept most of the day! She was happy when Nanny and Ryan showed up with a new doc mcstuffins toy to play with.

She received a blood transfusion today which ran over the course of 3 hours. She was annoyed because they need to check vitals often during the transfusion. Her NG tube is placed and we will begin feeds tonight. She also will receive an immune booster medicine tonight that will run over the course of 2 hours with checking vitals every 15 minutes.

Ryan was tested today and we will know in 2 weeks if he's a match. Again, there's a better possibility of a stranger being a match than Ryan. Jen from JPC Children's Foundation is working hard getting ready for the drive. A June date will follow soon.

Tomorrow morning will be her last steroid dose for 10 days. Hoping she can rest up this weekend with Daddy! Monday morning will be another spinal tap. We are praying that she continues to show no leukemia cells in her spinal fluid.

Have a a great weekend!