Just a little update... We pulled out Mia's NG Tube a week and a half ago. She is doing great with eating. We are working on trying to get her to eat a variety of foods. She has been taking all of her medicine by mouth, she is usually not pleased but hopefully she will get use to it soon. The most challenging thing is that she decides to eat close to bedtime and then she can't get her oral chemo until 2 hours after that. Mike and I sneak in and give it to her while she's sleeping every night and she usually just yells at us, but thankfully goes right back to sleep.
Her surgery to remove her port is scheduled for November 23rd. She will also get a spinal tap and IV chemo that day and unfortunately will be starting her 5 days of steroids. She had a rough go with the steroids last month.
Thankfully, everyone in our house is healthy! I can't believe we are approaching a year since she was diagnosed. It definitely brings a lot of mixed emotions, but we are so thankful that she is healthy and doing great. We are looking forward to a quiet Thanksgiving at home! I will update you after her surgery!