Mia is on her way home! She had a tough time with the anesthesia and woke up prematurely. Needless to say she wasn't happy!
She is doing great now with some oxycodon, and is napping!
She was a little upset that they took her port! Lol! Only Mia!
Have a great day!
Monday, November 23, 2015
Thursday, November 19, 2015
November 19th, 2015
To think this coming weekend last year was the day our lives changed forever! I vividly remember that day like it was yesterday and can replay all of the events back in my head. The days after that were a blur for the most part, but the one thing I will always remember is the love and support from everyone around us and for that I will always be grateful! I don't think we would have made it through this past year without our incredible parents, amazing family, friends, co-workers, and even the kindness & generosity of complete strangers. I am a better person because of all of you!
It's truly amazing what this little girl has fought so hard to overcome. Over the past year, she has had to learn how to sit up, crawl, and walk again on 3 separate occasions, fight off 2 serious, life threatening infections if the cancer wasn't life threatening enough, and received countless surgeries and chemotherapy. She is truly resilient!
Mia, Ryan, and Logan are my inspiration! They have been through so much yet they continue to smile through it all. They have experienced things that no child should have to live through, things that will haunt me for the rest of my life. They are the strongest and bravest people I will ever know and I'm so proud to be their mom!
With all that being said, Mike and I can't express how thankful we are for everything. We are honored that you have chosen to take this ride with us and feel unbelievably blessed! This Thanksgiving I can truly say we are thankful beyond words!
Mia is scheduled for her surgery on Monday at 8:45 am. The surgeon from the city has booked the OR for an hour and then the oncologist will also do her spinal tap at the same time. Please say an extra prayer for a quick and easy recovery! Thanks!
Wishing you and your family a Happy & Healthy Thanksgiving!
It's truly amazing what this little girl has fought so hard to overcome. Over the past year, she has had to learn how to sit up, crawl, and walk again on 3 separate occasions, fight off 2 serious, life threatening infections if the cancer wasn't life threatening enough, and received countless surgeries and chemotherapy. She is truly resilient!
Mia, Ryan, and Logan are my inspiration! They have been through so much yet they continue to smile through it all. They have experienced things that no child should have to live through, things that will haunt me for the rest of my life. They are the strongest and bravest people I will ever know and I'm so proud to be their mom!
With all that being said, Mike and I can't express how thankful we are for everything. We are honored that you have chosen to take this ride with us and feel unbelievably blessed! This Thanksgiving I can truly say we are thankful beyond words!
Mia is scheduled for her surgery on Monday at 8:45 am. The surgeon from the city has booked the OR for an hour and then the oncologist will also do her spinal tap at the same time. Please say an extra prayer for a quick and easy recovery! Thanks!
Wishing you and your family a Happy & Healthy Thanksgiving!
Thursday, November 12, 2015
November 12th, 2015
Just a little update... We pulled out Mia's NG Tube a week and a half ago. She is doing great with eating. We are working on trying to get her to eat a variety of foods. She has been taking all of her medicine by mouth, she is usually not pleased but hopefully she will get use to it soon. The most challenging thing is that she decides to eat close to bedtime and then she can't get her oral chemo until 2 hours after that. Mike and I sneak in and give it to her while she's sleeping every night and she usually just yells at us, but thankfully goes right back to sleep.
Her surgery to remove her port is scheduled for November 23rd. She will also get a spinal tap and IV chemo that day and unfortunately will be starting her 5 days of steroids. She had a rough go with the steroids last month.
Thankfully, everyone in our house is healthy! I can't believe we are approaching a year since she was diagnosed. It definitely brings a lot of mixed emotions, but we are so thankful that she is healthy and doing great. We are looking forward to a quiet Thanksgiving at home! I will update you after her surgery!
Her surgery to remove her port is scheduled for November 23rd. She will also get a spinal tap and IV chemo that day and unfortunately will be starting her 5 days of steroids. She had a rough go with the steroids last month.
Thankfully, everyone in our house is healthy! I can't believe we are approaching a year since she was diagnosed. It definitely brings a lot of mixed emotions, but we are so thankful that she is healthy and doing great. We are looking forward to a quiet Thanksgiving at home! I will update you after her surgery!
Sunday, November 1, 2015
November 1st, 2015
We are so thankful to get to be home for the holidays this year! Last year, we spent thanksgiving and Christmas Eve at CHOP. There are many children who won't be able to be home to celebrate with their families! This year we will be collecting gifts for the children living on the oncology floor at chop and their siblings. We feel so lucky for all of the support and generosity we have received all year and want to pay it forward. If you would like to help us with this endeavor, we will be collecting toys for both boys and girls ages birth to 18. Crafts and gift cards for the older kids are also helpful. I will be collecting items for the whole month of November as the Ronald McDonald House will be hosting a holiday workshop in December for the families. Thank you to anyone willing to help!
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