So Mia officially started maintenance today! We are so excited as this has been a long 11 months for her! She will now only go every 4 weeks for chemo unless she gets sick. They have scheduled her next spinal tap along with removing her port for November 23rd. We will find out more about that procedure soon. Also, we will be pulling her feeding tube this week and hoping that she will begin eating normal again as we get further into maintenance. All good things and heading in the right direction!
Mia's airway closed during her spinal tap today. Apparently, she had a lot of green mucous which we were unaware of. Being she has her NG tube, it was all down in her throat and stomach. When she was given anesthesia, her airway closed immediately so they had to give her more meds and open her airway. The anesthesiologist needed to suction her nose, throat, and stomach. They also put a breathing tube in to help her. Needless to say, she woke up coughing and pretty agitated. The oncologist said that next time she shows any signs of a runny nose even if it's clear like it was they will postpone the procedure so that she is not put in that position again. She was pretty tired tonight so hopefully she will wake up refreshed tomorrow morning!
Great news, Ryan's fever finally broke and he is allowed to leave the 2nd floor and go back to school! He is still pretty tired but recovering well. We are still waiting for his blood work results.
Of course things can't be quiet around here. Logan now has a second ear infection with his new tubes. We will be following up with the ENT soon!
Other than that, we are looking forward to Halloween and a peaceful weekend! And of course we thank you for your continued support and prayers!
