October 27th, 2015

So Mia officially started maintenance today! We are so excited as this has been a long 11 months for her! She will now only go every 4 weeks for chemo unless she gets sick. They have scheduled her next spinal tap along with removing her port for November 23rd. We will find out more about that procedure soon. Also, we will be pulling her feeding tube this week and hoping that she will begin eating normal again as we get further into maintenance. All good things and heading in the right direction!

Mia's airway closed during her spinal tap today. Apparently, she had a lot of green mucous which we were unaware of. Being she has her NG tube, it was all down in her throat and stomach. When she was given anesthesia, her airway closed immediately so they had to give her more meds and open her airway. The anesthesiologist needed to suction her nose, throat, and stomach. They also put a breathing tube in to help her. Needless to say, she woke up coughing and pretty agitated. The oncologist said that next time she shows any signs of a runny nose even if it's clear like it was they will postpone the procedure so that she is not put in that position again. She was pretty tired tonight so hopefully she will wake up refreshed tomorrow morning!

Great news, Ryan's fever finally broke and he is allowed to leave the 2nd floor and go back to school! He is still pretty tired but recovering well. We are still waiting for his blood work results.

Of course things can't be quiet around here. Logan now has a second ear infection with his new tubes. We will be following up with the ENT soon!

Other than that, we are looking forward to Halloween and a peaceful weekend! And of course we thank you for your continued support and prayers!

October 25th, 2015

Mia will go again this Tuesday and hopefully be ready this time for her spinal tap and chemo. She has been doing well and has been trying to eat a little more.

Unfortunately, Ryan is still running a fever since last Monday. He has been so good about staying upstairs in his and my room even though it hasn't been easy for him! We will be taking him for blood work tomorrow. Luckily, Mia and Logan have stayed healthy!

I hope everyone has a great week!

October 20th, 2015

Unfortunately, Mia's immunity levels were not high enough to start chemo today. We will wait for another OR date next week and hopefully her body will recover by then.

Ryan spiked a temperature of 102.7 last night. We are praying that he gets better fast and that she avoids catching it. He tested negative for strep and the flu so it's viral.

Please say a prayer that this is short-lived and Mia and of course Logan don't catch it!

October 17th, 2015

So Mia has had a good week! Not sleeping well at night but having great days!

She will start Maintenance on Tuesday with a spinal tap, IV chemo, oral chemo and steroids. We are hoping the effects of the steroids won't be as bad as previous cycles. We are also starting to wean her off of the anti-nausea Meds she has been on. One is considered a narcotic so we are weaning slowly hoping to avoid any side effects.

She has been enjoying playing with her two amazing brothers! They decorated halloween cookies tonight and loved making a mess together!

October 13th, 2015

Mia made it through the weekend without any fevers! Thank you for your prayers, they definitely helped!

She went to the clinic this morning. Her body is recovering from this cycle and her immunity went up from Friday. Her liver enzymes are still pretty elevated from the chemo last week so they will continue to keep an eye on them. Her doctor was happy with her checkup and gave her the flu shot she needed.

We will be officially starting maintenance chemo next week. We are just waiting on the OR to give us the day for her spinal tap so we can begin. She will also have her port removed in November.

Praying for a smooth transition to maintenance as her body adjusts to her new medication schedule. Have a great week!

October 9th, 2015

Mia went for bloodwork yesterday morning. All of her immunity levels have dropped significantly so we are keeping a close eye on her for any fevers. In the past, she has gotten really sick when her levels are this low! Please say an extra prayer that she bounces back fast without a fever! Thank you!!!

October 6th, 2015

Mia had a good day today! Luckily, she did not spike a fever last night. She received her transfusion today also. We will go to Labcorp before work on Thursday to recheck her red blood cell count and platelets.

She is still struggling with her c-diff infection and has been on antibiotics every 6 hours for 14 days and it is still not resolved. We will be following up with the gastroenterologist within the next month. We are hoping he will have a solution and have already discussed some possibilities with oncology. Hopefully, the rest of the week will remain quiet. Thank you for all of your prayers!!!

October 5th, 2015

Her blood work on Friday showed low levels of everything and today was the same. Her blood levels and immunity are low. Mia had a low grade fever over the weekend, but it wasn't enough to go to the ER thank goodness! She's been fighting off a cold all weekend and now it seems like it has turned into croup. We are praying that with her low immunity and the fact that she is fighting off illness that we stay out of the hospital.

She received her last chemo of this cycle today! She will go for a blood transfusion tomorrow and will probably have to be rechecked again this week. Her platelets are also low, so she has been bruising easily.

She will hopefully begin Maintenance chemo on October 21st, fingers crossed! Hoping for a smooth week despite everything going on!