Saturday, April 25, 2015
April 25th, 2015
Mia's spinal tap went well. Unfortunately, due to inexperienced nurses she was woken up prematurely and very agitated. Needless to say I'll be speaking to the department on Monday. She started her chemo last night and it will run until 8pm tonight. She's very nauseous and wasn't able to hold her normal tube feed down that she usually gets over night. Besides that, she's acting like her usual spunky self! She had a music teacher come in to play for her yesterday and she just gave him dirty looks and clearly wasn't impressed with his music abilities! She's definitely a character!
Friday, April 24, 2015
April 24th, 2015
I have to apologize for not posting as often as I should. However, things can be overwhelming at times and it's not always easy to share feelings especially online.
As i put both of my boys to bed crying tonight, I realize again that the simple things in life truly matter the most. Although Logan has a hard time expressing himself, he is truly confused about what is going on and acts out because of the many changes and uncertainties in his life. Ryan was very upset that I won't be here tomorrow morning and that Monday to him is really a long time away. Both of their feelings are valid, and when I stop and think about all of the stupid shit we worry about in life, none of it really matters. Family is what matters! Love is what matters! Life is what matters! It breaks my heart knowing that both boys went to sleep feeling uneasy and I have no control over the situation. It really puts things in perspective for me. There is no nice way to say it, but Cancer Sucks! I pray that your family will never know what it feels like. Although, I know the things my children are experiencing will make them stronger individuals in the future, no kid should have to live it! With that being said, even though I don't express it enough; your prayers, support, and love over the past few months have meant more than you will ever know!
So tomorrow we go back in for a spinal tap and another round of high dose chemotherapy. She was originally scheduled for Monday, but her levels were not high enough. We will be leaving here at 5:30 am in the morning which will be tough being we can't see the boys! Hopefully, the earlier they start means the faster we can get home to them! Please pray for not only Mia, but for my boys as they are dealing with more than they should be! xoxo
As i put both of my boys to bed crying tonight, I realize again that the simple things in life truly matter the most. Although Logan has a hard time expressing himself, he is truly confused about what is going on and acts out because of the many changes and uncertainties in his life. Ryan was very upset that I won't be here tomorrow morning and that Monday to him is really a long time away. Both of their feelings are valid, and when I stop and think about all of the stupid shit we worry about in life, none of it really matters. Family is what matters! Love is what matters! Life is what matters! It breaks my heart knowing that both boys went to sleep feeling uneasy and I have no control over the situation. It really puts things in perspective for me. There is no nice way to say it, but Cancer Sucks! I pray that your family will never know what it feels like. Although, I know the things my children are experiencing will make them stronger individuals in the future, no kid should have to live it! With that being said, even though I don't express it enough; your prayers, support, and love over the past few months have meant more than you will ever know!
So tomorrow we go back in for a spinal tap and another round of high dose chemotherapy. She was originally scheduled for Monday, but her levels were not high enough. We will be leaving here at 5:30 am in the morning which will be tough being we can't see the boys! Hopefully, the earlier they start means the faster we can get home to them! Please pray for not only Mia, but for my boys as they are dealing with more than they should be! xoxo
Monday, April 13, 2015
April 13th, 2015
Mia handled this last round of chemo pretty well! Mia met a new friend while at the hospital who played Ukele for her and both girls shared some sweet moments. The people we have met along this journey are amazing. Mia enjoyed walking the halls in the hospital and chatting with all of her past nurses. She is very popular! LOL!
Before we left, I had the nurse check her stool because she still has diarehea even though she finished her antibiotics from her last staff infection. We got a call yesterday that she tested positive for the rotavirus. So now we are just hoping that the boys do not catch it and that it clears quickly. We are just monitoring her for dehydration and will keep an eye on how things progress.
Besides that, she is happy to be home with her brothers and is enjoying taking care of all of her baby dolls! She definitely is such a strong little girl! The boys have been amazing also! We are so blessed!
Before we left, I had the nurse check her stool because she still has diarehea even though she finished her antibiotics from her last staff infection. We got a call yesterday that she tested positive for the rotavirus. So now we are just hoping that the boys do not catch it and that it clears quickly. We are just monitoring her for dehydration and will keep an eye on how things progress.
Besides that, she is happy to be home with her brothers and is enjoying taking care of all of her baby dolls! She definitely is such a strong little girl! The boys have been amazing also! We are so blessed!
Tuesday, April 7, 2015
April 7th, 2015
So things have been pretty quiet this week. The vomiting and nausea resolved before Easter and Mia has been eating which is fantastic! She's excited to be home and playing with her toys and big brothers!
Tomorrow, we will get her second treatment of this cycle which will be another dose of 24 hour high dose chemo and then we wait for it to be excreted through her urine before we can go home. Hopefully, we will be home by Saturday or Sunday! Hope everyone had a blessed Easter and Passover and we thank you again for your continued prayers and support!
Tomorrow, we will get her second treatment of this cycle which will be another dose of 24 hour high dose chemo and then we wait for it to be excreted through her urine before we can go home. Hopefully, we will be home by Saturday or Sunday! Hope everyone had a blessed Easter and Passover and we thank you again for your continued prayers and support!
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