So we came to CHOP er last night because we found that Mia's diaper rash was actually an infection on her private area. She had an ultrasound late last night and thankfully, there is no fluid that needs to be drained. She is on 3 different iv antibiotics and morphine for pain. She is in a lot of pain and unfortunately can't even sit up nor wants to be held because she is so uncomfortable.
Looks like we will be here for the week and the nurse mentioned that they will most likely place an n g-tube by the end of the week because she has dropped some weight and will not eat anything. Her counts will definitely not be high enough for the biopsy they had planned for Wednesday, but will be monitoring her closely.
I can't even describe in words how grateful we feel to have so much support and love from everyone! I don't know how we became so lucky! My heart is full! Thank you!
