Mia had surgery on Tuesday for her port and everything went well except her becoming hypoglycemic from fasting. The doctor will now hook her up to fluids on any days requiring surgery as soon as we arrive. Mia started her 1st day of her 2nd round of chemo on Wednesday. She has been nauseuos, so we have been giving her anti-nausea meds around the clock. Eating and drinking have been difficult for her so we just buy and offer lots of different foods and hope she eats something! She's definitely better when the boys are around to distract her so tomorrow should be interesting when they are back at school!
Her final bone marrow biospy results showed 2.5% of Leukemia left which is better than the 5% preliminary results. She should have been at 0% to be considered in remission this month but we will take it one day at a time. This cycle will last approximately 57 days and then they will repeat the biospy which then needs to be below 0.01% to avoid a 3rd round of stronger drugs some of which will have to be given inpatient. Her last 2 spinal taps and blood work have showed 0 leukemic cells which is amazing! We are praying that this continues. Tuesday she will have her labs and spinal fluid checked again and will receive chemo in her spinal fluid. After that, we have 2 more spinal taps this month. She is also receiving chemo injections 4 times a week and taking a daily oral chemo. Needless to say, she is one tough kid and has been in good spirits this weekend.
We will hopefully be starting physical therapy soon as she has regressed in that area. Not sure of the exact cause, but is probably a combination of being stuck in her hospital room, weight gain from the steroids from last round, and possibly nerve damage from one of her chemos which she will receive again this month. Thankfully, she has been improving a little bit on her own everyday!
Please continue to pray for good results with minimal side effects as we enter into this next phase of treatment! Again we appreciate all of your support and prayers during this challenging time in our lives! We feel very blessed for everything everyone has done for us and will keep everyone in our prayers as well!
Love,
Teresa
