Maintaining Weight (Transplant Day +197)

Mia had a good appointment today and all of her counts looked great. Her weight is stable and her appetite and taste buds seem to be slowly returning! Today she received 2 infusions again, IVIG (immunoglobulin G) and Pentamidine (prevents pneumonia). It was a long day, but she did great!

She will be back again in 2 weeks for blood work to check the % of donor cells in her blood!

She's doing great at home! She's been getting home instruction, PT, and OT every week and enjoying it all! We are so fortunate to have such amazing and caring teachers!

We are all excited to be able to celebrate Ryan's 10th birthday tomorrow! Mia already taste tested the cupcakes and gave her stamp of approval!

We hope you have a great weekend!

Transplant day +197

Marrow Stable (Transplant Day +188)

Mia's results took a little longer to come back this time! Her bone marrow engraftment is still currently 99% donor, which means that there is still 1-2% of her own cells left. Things are stable and there is no sign of cancer which is great. She will have another bone marrow biopsy in 2 months. Her doctors are reporting that they are seeing these same numbers in kids who are further along and are still doing good. Praying this is the same for our Mia. She will go back on 2/24 for a check up and infusions. Thank you for always keeping us in your prayers.

Transplant day +188