Holiday Toy Drive

Calling all Team Mia members!

We are partnering up again with the Ronald McDonald House of Philadelphia! It's that time of year again when we try and help those who are dealing with more than they should! The past 2 years our Holiday collection for children fighting cancer at CHOP has been amazing! Your generosity has been amazing! We will begin collecting gifts and gift cards soon! If you would like to help, please email (teresacastellan@yahoo.com) or message me here on Facebook and I'll give you all the information! Thank you!

Down to 2 Week Doc Appointments (Transplant Day +68)

Mia had a good visit today. She received an immunoglobulin G infusion. Hopefully her body will be able to produce this antibody by itself within the next couple of months. She's still on antibiotics which have been a huge issue for her stomach. She hasn't been eating or sleeping well. We added another anti-nausea and reflux medication which seems to be helping a little bit. Saturday morning will be the last dose! Her weight is down because of this so hopefully things will resolve next week! We also get a week off next week, so our next appointment is November 1st.

Your prayers are truly amazing! Go Team Mia!

Transplant day +68

MRD = Negative (Transplant Day +61)

Mike and I wanted to thank you for all of your generous donations and support. You have made life so much easier and helped us to be able to just focus on Mia's well-being and care. We are truly grateful and your kindness will be long remembered!

Mia's MRD(minimal residual disease) test came back today and there is no evidence of leukemia in her bone marrow! All of her other lab work looked great too! There will be another test(blood work) closer to day 100 which will give us a good idea on how she's responding to transplant!

She is finally coming off her steroids today which is also great news. If everything looks good next Tuesday, our office visit will be every 2 weeks as opposed to every week!

God is good! Team Mia is amazing! Thank you again for your extra prayers and support! xoxo

Team Mia is beyond amazing!

Transplant Day +61

Back To The Apartment... Again (Transplant Day +58)

Mia was discharged this afternoon! Her and daddy get to hang out for the weekend! Hopefully the 14 day dose of oral antibiotics they sent her home on does the trick!

We will be back in the clinic on Tuesday so hopefully we will have more results back on her bone marrow by then! Have a great weekend!

Thank you again for your extra prayers and support! xoxo

Team Mia is beyond amazing!

Transplant Day +58

May Finally Have Gotten to Issue (Transplant Day +57)

So the plan has changed a couple of times today but here's the latest. She had a scope last night late with ENT, complete torture for her but they didn't see anything concerning. They are going to order some additional blood work to test for possible fungi and mold. Depending on the results of the blood work they might order a biopsy of her sinus area that's inflamed. For now, they are going to switch antibiotics and treat her for sinusitis for 14 days. We are hoping this is the cause of the fevers! She will get an IV dose tonight and tomorrow of the new antibiotic and then will hopefully be released tomorrow afternoon on oral meds.

We also got the microscopic results of her bone marrow biopsy and so far there is no evidence of leukemia. We should have official and final results on Monday or a Tuesday so please keep praying!

Thank you again for your extra prayers and support! xoxo

Team Mia is beyond amazing!

Transplant Day +57

Back in the Hospital (Transplant Day +56)

Mia is still having fevers. Her 24 blood culture was negative for any bacterial growth. Being this has been the pattern for 3 weeks, the doctors thought that it might all be related. It seems like her fevers clear up with IV antibiotics and then return again once she is off. She had a CT scan with contrast late this afternoon. She was amazing, because we skipped the sedation and she fully cooperated! Right now all we know is that they see something on the right side of her sinuses but aren't sure whether it's viral or bacterial. They are waiting on a consult from both infectious disease and ear, nose, and throat. We might not have any answers until tomorrow. They also might switch up her antibiotics once they have a consult or order further tests.

Thank you again for your extra prayers and support! xoxo

Team Mia is beyond amazing!

Transplant Day +56

60 Day Bone Marrow Biopsy (Transplant Day +55)

Thank you for the many messages and texts we received for Mia! She did great and is home napping! She did have a temperature of 100.4 at the clinic this morning, so if she has 2 more of 100.4 or higher in the next 24 hours then she will have to be admitted again! Praying it stays down this time. Her blood work and check up was great though! We should have the microscopic results by Friday and the final results by Monday. Thank you again for your extra prayers and support! xoxo

Team Mia is beyond amazing!

Transplant Day +55

Tomorrow 60 Day Biopsy (Transplant Day +54)

So we go into tomorrow morning with a lot of anxiety! Every appointment and every lab makes you hold your breathe until you hear that things are okay. Tomorrow is Mia's bone marrow biopsy. She is scheduled to be there at 7:30 am. Even though we won't know any results tomorrow, your prayers are beyond appreciated and needed! Please send extra prayers and good vibes tomorrow! Thank you again!!!

Team Mia is beyond amazing!

Transplant Day +54

Feeling So Much Better (Transplant Day +51)

Mia is feeling so much better! Her magnesium levels are a little low which is the result of one her new meds, but she is on a supplement which will start helping! She was discharged this afternoon and is happy to be in her apartment as she calls it! She even started eating a little today which is great! Her bone marrow biopsy is still scheduled for Wednesday! Keep the prayers coming! God is good!

Thank you Team Mia!

Transplant day +51

Out of the Hospital (Transplant Day +51)

24 Hours no fever and we are free to go... Mia didn't even want to say goodbye to some of her favorite nurses. They got a slight wave.

Transplant Day +51