When we were in CHOP last year, we met an amazing family from NY. Their little girl, Gabby who was finished with treatment last year recently relapsed. She is currently in the hospital receiving chemotherapy treatments. She has also been pretty sick. Please keep Gabby and her family in your prayers!
Once Gabby's treatments are finished, she will need a bone marrow transplant. Please consider registering to be a bone marrow donor. 70% of patients who need a transplant do not have a matched donor in their family. You could be that one person to save a life!
If you are interested, please visit https://bethematch.org
Thank you!
Wednesday, January 27, 2016
January 27th, 2016
Mia did great on Friday. She was upset that she couldn't eat or drink anything on the way down. She recovered from the anesthesia nicely and ate well after returning to the clinic. We are so lucky to have such amazing nurses, doctors, and a fantastic social worker that welcome Mia with open arms each time we visit. She loves the clinic!
She also started steroids on Friday so the side effects are in full swing. She is definitely moody on and off, having trouble sleeping, and craving sausage. Tomorrow will be her last dose so we are looking forward to the side effects wearing off soon. She has been complaining she's tired which is what usually happens but hasn't been sleeping well at night despite getting benedryl.
Her ANC (Absolute neutrophil count) has dropped since last month; this is her ability to fight off infection. However, this is a good thing because they want it lower than it's been. They watch it to make sure it is within a certain range to ensure her chemotherapy doses are strong enough and working. Luckily, she has been healthy. We have managed to keep her healthy even though Logan recently had Strep and a viral infection. Praying our luck continues!
Mia was able to play in the snow for the first time! She was hospitalized during all of the snow days last year. Ryan was great and held her hand to help her walk through the snow and Logan played with her making mini pretend snowmen. They all had a great time!
Have a good night!
She also started steroids on Friday so the side effects are in full swing. She is definitely moody on and off, having trouble sleeping, and craving sausage. Tomorrow will be her last dose so we are looking forward to the side effects wearing off soon. She has been complaining she's tired which is what usually happens but hasn't been sleeping well at night despite getting benedryl.
Her ANC (Absolute neutrophil count) has dropped since last month; this is her ability to fight off infection. However, this is a good thing because they want it lower than it's been. They watch it to make sure it is within a certain range to ensure her chemotherapy doses are strong enough and working. Luckily, she has been healthy. We have managed to keep her healthy even though Logan recently had Strep and a viral infection. Praying our luck continues!
Mia was able to play in the snow for the first time! She was hospitalized during all of the snow days last year. Ryan was great and held her hand to help her walk through the snow and Logan played with her making mini pretend snowmen. They all had a great time!
Have a good night!
Tuesday, January 19, 2016
January 19th, 2016
Sorry for the delayed update. As you know, life tends to get busy at times.
The kids had an amazing Christmas. Ryan said that this was the best Christmas ever, and we couldn't agree with him more. Mia got the infamous pink car she has been talking about for months and Logan enjoyed riding it with her.
Mia has had issues eating on and off the past few weeks. We are attributing it to the switch in her nightly chemo. She is back on anti-nausea meds twice a day and we are seeing some improvements. She still enjoys her pink oreo cookies and sausage! :) Her new trick is to ask for food at bedtime of course. The only problem with that is that it delays her getting her oral chemo which she can't get until two hours after any food or milk. It's all good!
She will get her monthly IV chemo and spinal tap this week and also begin steroids for 5 days starting on Friday.
Other than that, she says she would like a new baby, a pink one that is! She enjoys playing with her Nana everyday and looks forward to her PT and OT coming every week. She is still receiving both therapies and is making great progress.
I hope everyone has a great week!
The kids had an amazing Christmas. Ryan said that this was the best Christmas ever, and we couldn't agree with him more. Mia got the infamous pink car she has been talking about for months and Logan enjoyed riding it with her.
Mia has had issues eating on and off the past few weeks. We are attributing it to the switch in her nightly chemo. She is back on anti-nausea meds twice a day and we are seeing some improvements. She still enjoys her pink oreo cookies and sausage! :) Her new trick is to ask for food at bedtime of course. The only problem with that is that it delays her getting her oral chemo which she can't get until two hours after any food or milk. It's all good!
She will get her monthly IV chemo and spinal tap this week and also begin steroids for 5 days starting on Friday.
Other than that, she says she would like a new baby, a pink one that is! She enjoys playing with her Nana everyday and looks forward to her PT and OT coming every week. She is still receiving both therapies and is making great progress.
I hope everyone has a great week!
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