Mia was in the emergency room over the weekend. She spiked a 101.4 temp on Saturday afternoon. We had to go to the local ER being the Pope was in Philadelphia. The chop doctors waited to see what her immunity level was and then would come transport her if it was too low. Luckily, it was fine and she was able to get IV antibiotics there and return home. We were all thrilled and relieved. They took a culture which they are watching for any bacterial or fungal growths. We will get those results today but I'm sure they will be normal too hasnt had a fever since Saturday.
Mia will go for bloodwork this Friday in prep for her last chemo of this cycle the following week. She is still dealing with diarrhea and the c-diff infection. Hopefully, that will clear up soon!
Have a great week!
Monday, September 28, 2015
Saturday, September 19, 2015
September 19th, 2015
Mia has been doing well. She received chemo both Monday and Tuesday of this week. She stopped eating for a couple of days and now is back to eating a little bit each day! On Tuesday, the nurse checked to see if they could easily get an IV in her hand. It was very easy and Mia did't even cry. Now that we know it is doable, we will be planning to remove her port sometime in her 2nd month of maintenance.
Her next spinal tap and chemo are scheduled for Thursday. This will be day 31 of our 57 day cycle. We are almost to maintenance!!! Unfortunately, she does have c-diff again, this is like the 5th time she will be treated for it. The antibiotics are ordered but we can't get them locally so we are awaiting their arrival. Besides that she has been happy playing and taking care of all of her babies, and there are tons btw!
We have been honored to be awarded "wishes" from a local wish granting foundation. JPC Childrens foundation has graciously selected all 3 of our children to be the recipients of this award. It is beyond amazing because the boys have been through a lot also and it validates the fact that they are warriors in this journey also! We couldn't be more thankful and honored! We will share details of the event as we get them.
Hoping everyone has a great weekend!
Her next spinal tap and chemo are scheduled for Thursday. This will be day 31 of our 57 day cycle. We are almost to maintenance!!! Unfortunately, she does have c-diff again, this is like the 5th time she will be treated for it. The antibiotics are ordered but we can't get them locally so we are awaiting their arrival. Besides that she has been happy playing and taking care of all of her babies, and there are tons btw!
We have been honored to be awarded "wishes" from a local wish granting foundation. JPC Childrens foundation has graciously selected all 3 of our children to be the recipients of this award. It is beyond amazing because the boys have been through a lot also and it validates the fact that they are warriors in this journey also! We couldn't be more thankful and honored! We will share details of the event as we get them.
Hoping everyone has a great weekend!
Saturday, September 12, 2015
September 12th, 2015
My mom and I took Mia early this morning to get her blood drawn before work. All of her levels came back fine so she is ready to continue her chemo on Monday and Tuesday. Her liver enzymes were elevated which is one of the major side effects of this chemo. They will retest her liver function again on Monday just to keep a close eye on it. This will be her 3rd dose out of 5 total doses of this new chemo this cycle. Once she completes Tuesday's chemo, we will be on day 22 of this 57 day cycle! So excited to be getting close to maintenance!
Despite some bus issues, the boys and I had a great first week of school! Mia has had an amazing week with Nana. We are so lucky and blessed to have her caring for Mia! ??
Despite some bus issues, the boys and I had a great first week of school! Mia has had an amazing week with Nana. We are so lucky and blessed to have her caring for Mia! ??
Tuesday, September 8, 2015
September 8th, 2015
Great news! Mia's cultures did not grow anything so she just needs to follow up in the clinic tomorrow! She's a little cranky but overall doing good! Thank you for the prayers!
Monday, September 7, 2015
September 7th, 2015
Mia started spiking fevers this morning. We spent the afternoon at the Children's Hospital Emergency Room. Of course, when we arrived there she didn't have a fever. They treated her with IV antibiotics and took a blood culture. We will have her test results back by tomorrow afternoon. They sent her home being her immunity levels are up. She spiked another temperature when we got home tonight. Hoping the Tylenol will help her sleep well!
Please pray that her blood cultures are negative so that we don't have to return to the hospital tomorrow. Thank you so much!
Please pray that her blood cultures are negative so that we don't have to return to the hospital tomorrow. Thank you so much!
Thursday, September 3, 2015
September 3rd, 2015
Quick update: All of Mia's labs were good today and she is ready for her chemo on Friday. Her crankiness seems to definitely be related to the chemo she is getting this cycle. She also had a great first day with her Nana (my mom)!
Wednesday, September 2, 2015
September 2nd, 2015
Mia has had a rough couple of days. She has been really tired and cranky. She is due for blood work on Thursday to test her liver function to see if it is high enough to continue her chemo scheduled for Friday. After speaking with Mia's nurse today, we are going to bring her to labcorp tomorrow morning so that we know all of her other levels just in case something else is going on. We are also hoping it is just the side effects of the chemo and that she is not getting sick.
On a funny note, she keeps getting her pocketbook and saying, "I'm going home!" Not sure where she thinks she is going but it is pretty entertaining!
On a funny note, she keeps getting her pocketbook and saying, "I'm going home!" Not sure where she thinks she is going but it is pretty entertaining!
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