July 30th, 2015

So to start off, Mia is doing very well and tomorrow will be her last day of IV antibiotics! She is also back to walking great! The bacteria was the cause of her leg troubles and luckily she is good as new! We will be heading home on Friday!

Tomorrow, my little fighter will be 2! It's amazing to think how fast this year has flew, when at times it felt like we were standing still! We are so grateful for the strength of all 3 of our children, as this was an eye opener for all of us. Everyday, they remind us how precious life is! They amaze me with their ability to adapt easily to our new normal! We are looking forward to celebrating with all of them tomorrow.

July 26, 2015

Mia has been improving each day. She has not had a fever in over 24 hours. She began walking yesterday with a good limp in her right leg but has been improving since then. The doctors are happy with her progress. Her leg issue seems to be related to the type of bacteria she has. If it isn't mostly resolved by Friday they will order an MRI just to make sure nothing else is going on. Other than that, she is playing and having fun in her room with her toys. We are working on a plan to help her celebrate her birthday here at the hospital on Thursday! We are hoping she can go home next weekend!

July 23rd, 2015

Infectious disease has identified the bacteria as pseudomonas, which they said while it's still considered a serious infection is common with these kids when they have no immunity. They will be switching up her antibiotics today to treat it!

As as far as her leg pain, her x-Rays from yesterday were all normal so no fractures. Currently, she can't walk or put any pressure on her right leg. It seems that the pain is coming from her hip. We are hoping that it's just related to chemo and that it will improve every day. She has been getting pain meds that have helped a little.

Once again, she is an amazing trooper and is still smiling!

July 22nd, 2015

So here is the latest... We are still waiting for the exact organism that Mia has. They did take a new culture yesterday and nothing grew from it so she is responding to antibiotics which is a good sign. Her last fever was at 2 am this morning along with some vomiting. She hasn't been able to put pressure on either leg and is more sensitive with her right hip. The put her on some morphine and are hoping that will start alleviating the pain. They ordered an x-Ray to rule out any fractures. Just praying it's nothing serious and that she will return to normal soon!

July 21st, 2015

Sorry, it has been a crazy couple of days and haven't had the chance to post on here. Here's what's been going on!

Sunday- we were in the chop er twice. First, was for platlets. We left around 3:00pm and on the way home Mia began vomiting and became lethargic. We turned around and went back to get her severe vomiting under control and then came home late that night.

Monday- we went to the oncology clinic for chemo and she wound up needing a blood transfusion as well. Mia spiked 102.3 during the infusion so they stopped gave her IV antibiotics, Tylenol, and fluids. Her fever went down and as we were about to leave she started shaking and spiked 102.3 again. They told me was safe to go home and would call in the morning if her blood cultures grew anything. I pulled over on the turnpike to check her and she was 103.9! So I decided to drive her to the er!

Today- just met with oncologist and it's definitely a bacterial infection. They will continue treating her around the clock with IV antibiotics until we get more results. Will hopefully know the type of bacteria it is by tonight or tomorrow morning and then her meds may change to treat the specific type. Looks like we will be here for at least 10 days if not more at this point! Please continue to keep her in your prayers! Thank you, we feel very blessed to have your support!

July 17th, 2015

It's been a busy week. Mia had a spinal tap on Monday and got her last 4 chemo shots. We are officially done with shots!! She hasn't eaten at all this week due to the shots. Luckily, I have been keeping her hydrated with her feeding tube. We are hoping she will start eating something over the weekend as we get further away from the shots. She also needed a blood transfusion on Wednesday. The next two weeks she will visit the clinic for chemo and possibly another transfusion or platlets. Her immunity is really low so we are just praying that she doesn't develop anymore fevers!

July 10th, 2015

Well, it's been a crazy week to day the least. After Mia had her treatments on Wednesday; she has not been eating or feeling well. On Thursday, I took Logan to CHOP for a follow up with cardiology and he did great. He has been released for 5 years now! As we were at the appointment, my mother in law called to let Mia know that Mia had spiked a fever. When I arrived home, she was pretty miserable so we headed into the CHOP ER in Philadelphia and were released late last night. Along with her spiking temps, her heart rate was between 170-190. They took blood cultures that will come back tonight so see if there are any bacterial growths. She also received plenty of fluids. We left again early this morning for an eye checkup for Logan and a follow up for Mia at the clinic. Logan made out great again! Mia spiked 102.8 and had an elevated heart rate again! They treated her with Tylenol and waited for her heart rate to drop a little and we were on her way home. Right now, they are thinking her chemo injections are causing her fevers and might pretreat next week when she starts them again. She will get her last shot tomorrow and then if her fever is gone will get another spinal tap on Monday morning! Please keep her and the boys in your thoughts and prayers as this is not easy on any of them! Have a wonderful weekend and Thank you for your continued support and prayers! I know I've said this before but we are beyond greatful for everything!

July 9th, 2015

Mia's counts were all ready to continue this cycle today. She had a spinal tap which went well. Her spinal fluid was still clear of cancer which is amazing! She woke up very lethargic which isn't usually like her, but eventually snapped out of it and was happy. She also received a 5 hour chemo and a chemo injection. So far so good! The nausea should start tomorrow, but we will see what happens! She brought her dollies and babies with her this morning and enjoyed pushing them in their stroller sound the clinic. It was a long day, but good nonetheless!

July 1st, 2015

Mia's counts were not ready to start this past Monday. She is currently scheduled for an all day chemo and a spinal tap next Wednesday. Hoping she continues to stay healthy and avoid any hospital trips. I hope everyone has a safe & happy 4th!