It's amazing how fast your life changes in an instant! Looking back to last year, we were celebrating summer and looking forward to all of the activities we had planned! This year is so very different as each week is driven by Mia's chemo schedule and blood levels! Unfortunately, it is a means to an end but still doesn't make it easy especially on the kids! With that being said, the boys are excited to be out of school and ready to start their summer vacation!
Anyway, Mia is having a very difficult time with the steroids and has been miserable. She received her last dose last night. Needless to say, the past week has been tough. She's been crying and screaming on and off all day and in my arms. She doesn't want to play or even walk. Her doctor is hoping that these nasty side effects that are making her feel so horrible will wear off in 4-5 days! We are hoping its sooner than that! If her levels are ready next week she will start the 2nd half of this 57 day cycle and will get 2 spinal taps each a week apart and the chemo injections I have been dreading along with some other chemo drugs. Please pray that it's not too tough on her! Thank you as always!
Tuesday, June 23, 2015
Thursday, June 18, 2015
June 18th, 2015
Mia is on her last week of steroids, thank goodness! The steroids have not been kind to her and she is feeling pretty lousy. Unfortunately, once she is on maintenance she will get steroids the first 5 days of every month for the entire length of her treatment. Mia has finished her chemo for now and will begin again in hopefully 2 weeks. Unfortunately, she will also be getting injections like she did in her second month of treatment which were really tough on her.
Other than that, she has become very outspoken little lady and enjoys yelling at the boys and waving her little pointer finger at us as she tells us NO! It's amazing how through all of the horrible things she has experienced that her unique and strong personality continue to shine through. Ryan has been an amazing big brother and enjoys playing with Mia. Logan has been a great helper and is always the first one to help her take her shoes off whether she likes it or not! We are looking forward to the end of the school year!
Other than that, she has become very outspoken little lady and enjoys yelling at the boys and waving her little pointer finger at us as she tells us NO! It's amazing how through all of the horrible things she has experienced that her unique and strong personality continue to shine through. Ryan has been an amazing big brother and enjoys playing with Mia. Logan has been a great helper and is always the first one to help her take her shoes off whether she likes it or not! We are looking forward to the end of the school year!
Friday, June 5, 2015
June 5th, 2015
Today is Day 5 of steroids and we are pretty irritable and moody at times! However, she's been eating a little and not vomiting at all which is great! So far not as bad as we thought things would be! Hopefully the weekend and next week remain uneventful! Have an amazing weekend!!!
Tuesday, June 2, 2015
June 2nd, 2015
Mia started her new cycle yesterday and literally made the requirements to start by 1 point. She handled everything great including the anesthesia which is sometimes a problem for her! I have to be honest, I was nervous that they would find something in her spinal fluid yesterday, but thank god it remains clear of cancer cells!!!
Today, she's been pretty miserable and is very nauseous. We are hoping if we stay ahead with all of her anti-nausea meds that the effects will be minimal. Other than that, we continue take one day at a time and just hope for the best!
Today, she's been pretty miserable and is very nauseous. We are hoping if we stay ahead with all of her anti-nausea meds that the effects will be minimal. Other than that, we continue take one day at a time and just hope for the best!
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