Tuesday, May 26, 2015
May 26th, 2015
Mia's levels weren't ready to start today so we are delayed by a week as of now. Praying she recovers without getting sick so we can move forward! Have a great week!
Sunday, May 24, 2015
May 24th, 2015
Mia has had a great weekend! She's eating better and feeling good!
She will start her next 57 day cycle on Tuesday that will include 2 different chemos, a spinal tap, and steroids! We are not looking forward to the side effects of the steroids and hoping they are minimal compared to when she had them initially! She will then be receiving other chemos during the weeks to come that she also hasn't had since the initial month! We are praying she tolerates everything much better than in the past!
We constantly reflect on our amazing support system and realize how lucky we are! Enjoy the rest of your holiday weekend! ????
She will start her next 57 day cycle on Tuesday that will include 2 different chemos, a spinal tap, and steroids! We are not looking forward to the side effects of the steroids and hoping they are minimal compared to when she had them initially! She will then be receiving other chemos during the weeks to come that she also hasn't had since the initial month! We are praying she tolerates everything much better than in the past!
We constantly reflect on our amazing support system and realize how lucky we are! Enjoy the rest of your holiday weekend! ????
Sunday, May 17, 2015
May 17, 2015
So great news... Mia's blood cultures were all negative except for the rhinovirus which is the common cold! Her fever broke yesterday and she is up and running around causing trouble and having fun! Enjoy the rest of your weekend! xoxo
Friday, May 15, 2015
May 15th, 2015
So this round is about over. Mia had her last admission chemo and did pretty well with it. Her oncologist does suspect that she has sores down her GI tract which is a common side effect of this type of chemo. The rest of her chemo is now all outpatient which she will receive at the Vorhees clinic. She has been working hard practicing her physical therapy exercises!
We were in the CHOP ER early this morning, as she started spiking fevers at 2 am. Their new protocol is to send patients home if their white blood counts are ok. She will get oral antibiotics here and they will continue to watch her blood culture to see if any of the major bacteria or virus infections grow. If something grows within the next 72 hours we will have to be admitted back for iv antibiotics.
Hoping and praying for an uneventful weekend!
We were in the CHOP ER early this morning, as she started spiking fevers at 2 am. Their new protocol is to send patients home if their white blood counts are ok. She will get oral antibiotics here and they will continue to watch her blood culture to see if any of the major bacteria or virus infections grow. If something grows within the next 72 hours we will have to be admitted back for iv antibiotics.
Hoping and praying for an uneventful weekend!
Sunday, May 10, 2015
May 10th, 2015
Happy Mother's Day to all of the moms out there...
To the new moms I have met along this journey of cancer; you are brave, amazing, and strong! Your strength has been an inspiration to me!
To all of my trisomy 21 moms; you have showed me what true love is with your acceptance, determination, and respect! You have taught me so much about myself!
To all of my mom friends/family near and far, past and present, and some I have never met; you have shown me what true compassion, empathy, and support looks like! I couldn't have gotten through these past months without you!
To my "sisters" and mother in law; you all have taught the true meaning of family! I can't imagine this journey without your never ending love and support!
To my mom; you are the most amazing and strongest woman I know! There are no words to describe the love Mia and I have for you! You have given me the strength and determination to endure everything life throws at us. I have learned so much by your example; especially your unconditional love! I wouldn't be half the person I am today without you!
I am one very lucky and blessed mom!
Thank you! xoxo
To the new moms I have met along this journey of cancer; you are brave, amazing, and strong! Your strength has been an inspiration to me!
To all of my trisomy 21 moms; you have showed me what true love is with your acceptance, determination, and respect! You have taught me so much about myself!
To all of my mom friends/family near and far, past and present, and some I have never met; you have shown me what true compassion, empathy, and support looks like! I couldn't have gotten through these past months without you!
To my "sisters" and mother in law; you all have taught the true meaning of family! I can't imagine this journey without your never ending love and support!
To my mom; you are the most amazing and strongest woman I know! There are no words to describe the love Mia and I have for you! You have given me the strength and determination to endure everything life throws at us. I have learned so much by your example; especially your unconditional love! I wouldn't be half the person I am today without you!
I am one very lucky and blessed mom!
Thank you! xoxo
Monday, May 4, 2015
May 4th, 2015
We came home late last Monday night! Mia has had a tough week, but thankfully stopped vomiting yesterday and actually started eating a little bit! We will be going back this coming Friday to see if her levels are ready for our last chemo admission of this cycle. After this, she still has many months of intense chemo to go but at least it can all be done outpatient.
We celebrated Ryan's 1st communion on Saturday and Mia's amazing Nana and Grandma took turns staying home with her so that Mike and I could be with Ryan. It was truly an amazing day for our family and we are so proud of him!
Mia has been busy chasing our poor dog, Lance and trying to steal all of Logan's toys; along with running and trying to keep up with Ryan! Life is good! We are so lucky and blessed!
We celebrated Ryan's 1st communion on Saturday and Mia's amazing Nana and Grandma took turns staying home with her so that Mike and I could be with Ryan. It was truly an amazing day for our family and we are so proud of him!
Mia has been busy chasing our poor dog, Lance and trying to steal all of Logan's toys; along with running and trying to keep up with Ryan! Life is good! We are so lucky and blessed!
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