Saturday, February 28, 2015
February 28th, 2015
We came home last night. Luckily, when she seems to get an infection it is only a 24 hour stay. The only downside is that she continues not to eat and the antibiotics make her vomit every time. So things will be challenging for the next 7 days but hopefully as she starts to recover from this chemo cycle, her appetite will start to return. She is tentatively scheduled for her biopsy for Wednesday; however I don’t think her body will be ready by then. I will be meeting with the doctor on Monday to discuss the plan and will pass the information to you as I know it. As for Logan, he is feeling much better. Seems like just a cold thank goodness! We will celebrate Ryan’s birthday tomorrow with his friends and then hopefully relaxing for the remainder of the weekend. I hope everyone has a great weekend!
Wednesday, February 25, 2015
February 25th, 2015
So much for the quiet and uneventful week! We are at CHOP with Mia; she has been running low grade fevers all day and extremely irritable. Logan is at the pediatricians' office because he threw up in Nana's car and is complaining that his throat hurts. Needless to say things are crazy!
Ryan opened his presents this morning before school! Knowing that she would probably wake up with a fever from her nap, I picked the boys up from school early. We enjoyed birthday cake with Ryan before any of this happened! He was excited and relaxed and enjoyed his birthday afternoon with a movie. Grandma and grandpa are out to dinner celebrating now and Logan is in good hands with Nana and Pop pop! We don't know what we would have down without our families. We are so lucky and blessed to have them!
Please pray ray for a quick turn around!
Ryan opened his presents this morning before school! Knowing that she would probably wake up with a fever from her nap, I picked the boys up from school early. We enjoyed birthday cake with Ryan before any of this happened! He was excited and relaxed and enjoyed his birthday afternoon with a movie. Grandma and grandpa are out to dinner celebrating now and Logan is in good hands with Nana and Pop pop! We don't know what we would have down without our families. We are so lucky and blessed to have them!
Please pray ray for a quick turn around!
Sunday, February 22, 2015
February 22nd, 2015
We were at the clinic everyday this week except for Thursday, so needless to say it has been a long and tiring week. Mia hasn't been throwing up which is great but still not eating very much. She gets her last chemo of this cycle on Tuesday and then the biopsy should follow shortly after. We won't have a date until her counts start recovering. She has been pretty irritable at night and we are not sure what is causing her discomfort but remember the same thing happening last month. We are also monitoring her for any fevers or illnesses as her white blood count is extremely low making her susceptible to getting sick and ending up in the ER. We are keeping our fingers crossed that she stays healthy and according to Mike I am using way to much Lysol!
She continues to have fun and is always amused when the boys and Daddy get home! We have also been lucky to have Nana and Grandma and Grandpa come to the clinic this week with use for extra help and entertainment. We are so very blessed by all the support we have and continue to receive. We are excited to celebrate Ryan's 8th birthday with a small celebration here on Wednesday being we can't take her out! I am hoping to have an uneventful week!
She continues to have fun and is always amused when the boys and Daddy get home! We have also been lucky to have Nana and Grandma and Grandpa come to the clinic this week with use for extra help and entertainment. We are so very blessed by all the support we have and continue to receive. We are excited to celebrate Ryan's 8th birthday with a small celebration here on Wednesday being we can't take her out! I am hoping to have an uneventful week!
Thursday, February 12, 2015
February 12th, 2015
Well, we are at the end of our 2nd week of this phase. Mia received a transfusion yesterday and will get another one along with platlets tomorrow. She has been extremely nauseous and hasn't eaten much of anything the past 2 days. Tomorrow she will also get her last chemo injection for the month. Hopefully, as we get further away from them, her eating will return. I had a lengthy discussion with the oncologist and what the future holds as far as treatments and it still all depends on whether she is in remission by the end of this cycle. It looks like either way her treatments will be given over short hospital stays and maybe longer if she is not in remission. He told me that he feels that she has a good chance of being in remission; while he reiterated that it wasn't a great chance I still took it as decent news. I am a strong believer in prayers and I know they work so I feel pretty confident that we will receive good news in the beginning of March!
Sunday, February 8, 2015
February 8th, 2015
Just a little update!
Everyone is healthy! Thanks to all of your prayers no one else in the house got strep throat!
Mia started chemo last Tuesday and has been tolerating it extremely well. We had a quick visit to the ER last Wednesday, but quickly figured out that being her weight dropped her anti-nausea meds were making her extremely dizzy. They adjusted her dose and she has been doing great ever since.
We had a visit to the GI doctor because her reflux has been acting up as well. The doctor upped her nexium dosage and we are back on track with that. The doctor was also pleased with her weight, especially considering everything she has been through. She is hanging right below the 50 percentile for weight which is awesome.
She is actually eating and drinking well most days. Her new favorite thing to do is drink yogurt drinks because she can drink them like Ryan and Logan and of course make a mess all over the kitchen! She also has found a new love for grilled cheese and rice krispies!
She is in great spirits. We go back to the clinic on Tuesday to check if she is in need of a transfusion, otherwise she will probably need one at some point this week. We also asked the doctor to get the road maps for us of the 2 possible 3rd rounds of chemo treatment so we can plan for the coming months.
Ryan will make his first penance this week so he is excited about that and Logan had a great time at his music class today! Both boys are doing well and adjusting to our new routines with Mia. Her hair continues to fall out and is extremely thin. We talked to the boys and they know that her blood is sick and that the medicine she is on causes her hair to fall out. We also explained that when her blood is healthy again, she will grow all new hair. They have been amazing big brothers and we are so proud of the both of them!
xoxo,
Teresa
Everyone is healthy! Thanks to all of your prayers no one else in the house got strep throat!
Mia started chemo last Tuesday and has been tolerating it extremely well. We had a quick visit to the ER last Wednesday, but quickly figured out that being her weight dropped her anti-nausea meds were making her extremely dizzy. They adjusted her dose and she has been doing great ever since.
We had a visit to the GI doctor because her reflux has been acting up as well. The doctor upped her nexium dosage and we are back on track with that. The doctor was also pleased with her weight, especially considering everything she has been through. She is hanging right below the 50 percentile for weight which is awesome.
She is actually eating and drinking well most days. Her new favorite thing to do is drink yogurt drinks because she can drink them like Ryan and Logan and of course make a mess all over the kitchen! She also has found a new love for grilled cheese and rice krispies!
She is in great spirits. We go back to the clinic on Tuesday to check if she is in need of a transfusion, otherwise she will probably need one at some point this week. We also asked the doctor to get the road maps for us of the 2 possible 3rd rounds of chemo treatment so we can plan for the coming months.
Ryan will make his first penance this week so he is excited about that and Logan had a great time at his music class today! Both boys are doing well and adjusting to our new routines with Mia. Her hair continues to fall out and is extremely thin. We talked to the boys and they know that her blood is sick and that the medicine she is on causes her hair to fall out. We also explained that when her blood is healthy again, she will grow all new hair. They have been amazing big brothers and we are so proud of the both of them!
xoxo,
Teresa
Tuesday, February 3, 2015
February 3rd, 2015
Poor Logan has strep and is recovering at Nana's house! Please pray that Mia doesn't get it so we can avoid another hospital visit. She had a great couple of days leading up to starting chemo tomorrow! She's been busy playing and being silly which is exactly how things should be. We are hoping the next four weeks move quickly and end in good news!
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